HEY, WAIT A MINUTE. I THOUGHT WE’RE THE ONES WHO ARE SUPPOSED TO BE THE CONSPIRACY NUTS.
For several months, we had some very pleasant exchanges despite our very different ideas about autism and the appropriate response to it. We occasionally took each other to task, but never with any malevolence on either side. Somewhere along the way, we simply went our separate ways; and lately we have, for the most part, ignored each other.
Of course, that hasn’t stopped me from occasionally lurking at Kev’s blog. Despite rolling my eyes in private from time to time, I usually kept my silence out of respect for someone for whom I still harbor friendly thoughts. But it’s hard to hold one’s tongue when faced with posts that are . . . well, bizarre.
Lately, Kev has put forth a conspiracy theory worthy of Oliver Stone. In short, he seems to feel that the notion that we may be able to biomedically treat our autistic children with methods that are frankly alternative is part of a plan by the Church of Scientology. To be sure, in a reply to one comment, Kev protests that he isn’t suggesting a conspiracy, but merely that a dangerous cult like Scientology shouldn’t be trusted with our kids. But one can’t use phrases like “this reeks of ‘set up’ to me” and not expect to conjure up images of conspiracies. I have always believed that if something has feathers, waddles, and quacks, it is probably a duck. Well Kev, your posts are quacking.
In one of his Scientology posts, Kev tries to prove his point by implying that Julia Berle, who he describes as “[o]ne of the darlings of the autism/vaccine movement,” is, at the least, a tool or dupe of those scheming Scientologists and possibly a willing co-conspirator. Because Ms. Berle is associated with Generation Rescue, that means that organization is obviously part of the plot as well.
And what does he base this on. Well it seems that Ms. Berle’s son attends a school that has the same name as a school that is a “feeder” to yet another school that Kev alleges has some kind of vague link to Scientologists. And somehow, that school attendance got translated into a little boy being “diagnosed” by Scientologists.
But that’s not all. According to Kev, doctors Ms. Berle chose to take her son to for treatment have connections to the Church of Scientology. Uh-huh. I really don’t know if the doctors he mentioned have any real connections to the Church or not, but you really can’t tell from Kev’s ramblings.
I don’t really have any known connections to Scientology other than having one relative who couldn’t get his name off of their mailing list after making the mistake of talking to one. Likewise, although I certainly know who Julia Berle is, I’ve never met her and I don’t have any real stake in defending her. But neither Ms. Berle, her son’s school, nor her son’s doctors need defending.
While not needing a defense, Ms. Berle nevertheless would like to clarify things. Tired of seeing her comments to Kev’s post play peek-a-boo (now you see it; now you don’t), she posted one of them to the EoH Group. I decided to give her comments a more secure home here.
Kevin,It’s just my opinion, but I think Kevin Leitch added two plus two, and arrived at a sum of 3,479. I’d expect better math skills from a computer guru.
How brilliant that you referred to me as a “darling.” That’s pretty much all you got right in your blog about myself and my son. First off the two doctors you referred to in your post treated Baxter AFTER he was diagnosed from 5 other sources (3 developmental pediatricians, 1 regional Center and 1 school district….I know nada of their religious affiliations. For any of them). The doctors you mentioned were not involved at all in his diagnosis at all. I merely went to them for treatment. When my son's diarrhea was bright yellow and running down his leg 35x/day and he was screaming 21 hrs/day and rolling car wheels the other 3 hrs I did not ask, nor care (still don’t) about their religious ties. They wanted to help my son’s health and they both facilitated in his healing.
With regards to his school I can only assume you googled the name and came up with this other feeder school. ??? ??? Because you are completely incorrect. The Renaissance Academy or something? I have never heard of it and we are in no way associated with it. It astounds me that you get on this world wide platform and expound “truths” of which you have no knowledge.
I am confused by your statement this is a “set up.” Set up for what? I can only guess you are further functioning under your afore mentioned misinformation. I respect that others don't believe their ASD children to be toxic nor need chelation or any other biomedical intervention. I do understand that autism has many different definitions in our community and how one reacts to it is obviously individual. Healthcare is also a very private choice and in my case was made with a great deal of in-depth analysis, information and thought with my spouse. You may not agree with what we came up with...but it worked and really…honestly Scientology had nothing to do with it (It’s very hard not to chuckle as I write that sentence!!).
I felt very sad and very alone at the time that Baxter was diagnosed and was very sick. I so wanted someone to reach out and offer a shoulder to cry on because I WAS crying. I was sad. I was alone. And I was not crying because my kid was autistic…my kid was not different or quirky or unique. He was desperately, desperately ill. That is why I was crying. If I had sat back and done nothing given his state it would have been within reason to call CPS on me.
So, I offer support and Baxter’s story in case anyone could glean some hope or possibly something to help their child as well. Come meet him. He’s a cool kid. He has no supports/therapy of any kind, is working waaaay above grade level (2 yrs), has tons of friends and just won the game ball (baseball) this past weekend. His first game. I wish you the best in your future with autism…with your daughter…wherever you want to put you energy. I respect it. I don’t even ask that you respect mine. But it would be nice.
Recovered in 2005